Roadmap for Sustaining Meaningful Patient Engagement
A method designed to guide ongoing and impactful involvement of patients in health technology assessment (HTA) processes, ensuring their perspectives are integrated in a respectful and effective way.
At a glance
Use when
Developing or improving patient engagement strategies in HTA; involving patients in adaptation or transfer of HTAs; working in settings with limited prior patient involvement
Avoid when
No institutional commitment to patient engagement; insufficient resources to support participation; tokenistic engagement is preferred over meaningful involvement
Inputs
Patient perspectives, stakeholder mapping, engagement goals, institutional capacity for engagement
Outputs
Engagement plan, feedback reports, documented patient input, recommendations for integration into HTA
How it works
The Roadmap for Sustaining Meaningful Patient Engagement outlines a structured approach to maintain patient involvement throughout HTA processes. It emphasizes principles such as inclusivity, transparency, capacity building, and feedback mechanisms to ensure patient input is systematically incorporated, particularly in settings where patient engagement is emerging or underdeveloped.
- HTA domains
- Organisational aspects, Patient and Social Aspects, Aspects Beyond HTA
- Assumptions
- Patients can provide valuable insights; institutions are committed to inclusive processes; mechanisms exist to support patient participation
- Strengths
- Promotes equity and inclusiveness; enhances legitimacy of HTA; supports responsiveness to patient needs
- Limitations
- Requires resources and training; may face institutional resistance; sustainability depends on political and financial support
Questions this answers
- › How can patients be meaningfully involved in HTA processes?
- › What steps ensure sustained patient engagement over time?
- › How can HTA agencies build trust with patient communities?
- › What support do patients need to participate effectively in HTA?
- › How can patient input be integrated into different HTA domains?
- › What are the key success factors for long-term patient engagement in HTA?
References & sources
Related methods
Similar by meaning
Beta record. Based on the original catalogue summary; primary-source enrichment pending.