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PUBLIC AND PATIENT INVOLVEMENT IN HEALTH TECHNOLOGY ASSESSMENT: A FRAMEWORK FOR ACTION

Methodpeer-reviewed✓ Source-grounded

This framework helps health technology assessment organizations involve patients and the public in their work. It provides guidance on when and how to include patient and societal perspectives, what goals to aim for, and how to evaluate the impact of involvement over time.

At a glance

Use when

Designing or improving patient and public involvement strategies in health technology assessment processes, especially within government or public HTA agencies

Avoid when

When organizational leadership lacks commitment to patient and public involvement or when there are insufficient resources to support meaningful engagement

Inputs

Stakeholder input, international best practices, literature on public and patient involvement, organizational context of HTA agencies

Outputs

A structured framework with guiding principles, common terminology, adaptable PPI methods, and an evaluation strategy for public and patient involvement in HTA

How it works

The framework was developed through a synthesis of international practices and literature, stakeholder dialogues, and deliberations of a government agency's public engagement subcommittee in Ontario, Canada. It consists of four core elements: (i) guiding principles and goals for public and patient involvement (PPI) in HTA, (ii) development of a common language to support PPI, (iii) a flexible menu of PPI methods tailored to different HTA stages and objectives, and (iv) continuous evaluation of PPI activities to inform iterative improvements. It emphasizes context-specific design based on the HTA stage, intended goals, and relevant societal or patient values.

HTA domains
Organisational aspects, Patient and Social Aspects, Aspects Beyond HTA
Assumptions
Public and patient involvement enhances the legitimacy, relevance, and responsiveness of HTA; meaningful involvement requires intentional design, resources, and organizational commitment
Strengths
Developed through comprehensive review and multi-level stakeholder engagement,Flexible and adaptable to different HTA contexts and stages,Includes mechanisms for ongoing evaluation and improvement of PPI activities
Limitations
Does not prescribe a single optimal method, requiring organizations to make context-specific decisions,Implementation success depends on organizational capacity and cultural readiness for PPI
Also known as
PPI Framework for HTA, Public and Patient Involvement Framework in HTA

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